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Gwinnett Chamber's Small Business Award Nominee for 2023 badge of recognition.

Coming Up

World Orphan Drug Congress

We were invited as main speakers in Boston! We are thrilled to present on Code Rare and our talk is titled:

Importance of Understanding the Significance of Data, Education, Next Step Care, Continuous Improvement in Clinical Care.

Newsworthy

Syringomyelia on FOX NEWS - YouTube

What is syringomyelia? - YouTube

Mail Online Videos: Top News & Viral Videos, Clips & Footage | Daily Mail Online

I Thought I Was Pregnant but I Actually Had a Debilitating Disease (cosmopolitan.com)

I'm a Nurse With Syringomyelia Determined to Make a Difference (themighty.com)

2016_atlanta_ga_house_press_release_final.pdf

Elizabeth's Battle Leads to New Hope in Organization for Rare Disease - YouTube

Lawrenceville woman with rare disease makes strides with charity | Lawrenceville | gwinnettdailypost.com

Beth Nguyen, R.N. - 2017 Rare Impact Award Honoree - National Organization for Rare Disorders (rarediseases.org)

NORD's 2017 Rare Impact Awards - YouTube

Amazon.com: BEYOND SYRINGOMYELIA: A Registered Nurse with a Rare Disease Overcomes Hardship, Embraces Blessings, and Empowers Lives! eBook : Nguyen, Beth: Kindle Store

Gov. Kemp Announces Appointments to Rare Disease Advisory Council | Governor Brian P. Kemp Office of the Governor (georgia.gov)

NORD 021717 video.mp4 NORD2020 1 (1) (1).mp4

Grant Support Letter

Check out our Podcasts on Apple, Spotify, etc

For media inquiries, to be a guest on our podcast or to have a member of our speakers bureau to be available at your event contact us.

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