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Code Rare Program

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Code Rare® is a program spearheaded by a paramedic and passionate registered nurse with a rare disease as a vital nationwide call to action: #MakeRareVisible


CODE RARE® shall be initiated by First Responders and hospitals to trigger immediate education delivery and specialized evidence-based resources for medical teams taking care of patients with rare diseases. 


The mission of Code Rare® is to inspire medical teams to collaborate with rare experts, nonprofits, patients, and families to advance understanding about next steps, diagnostics and patient-centered clinical care delivery for rare diseases. 

The goal of Code Rare® for patients and families is to support and improve the quality of life for children and adults with rare diseases in all aspects of their healthcare journey. 


Get in Touch

Lawrenceville, GA 30043

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